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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 01-0557037 · Snapshot of IRS recognition, filing currency, financial health, and governance.
FY2024 filed as a Form 990-N placeholder. The IRS has not yet released this organization’s full Form 990 for FY2024. All data on this profile reflects the most recent substantive 990 filing; the placeholder year appears in the Financials tab with no breakdown.
To promote awareness of Cockayne Syndrome and trichothiodystrophy, to educate and support physicians, research centers, and organizations addressing the cause of diagnosis while also collaborating with researchers and physicians to find treatments and the cure for Cockayne Syndrome and Trichothiodystrophy, and to assist in support of those suffering from CS and TTD and their families.
Principal Officer
Jacqueline Clark
Total Revenue
$0
FY2024
Total Expenses
—
FY2024
Net Assets
$0
Program Ratio
—
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.