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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 06-1057497 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.
Total Revenue
$1.1M
FY2024
Total Expenses
$1.1M
FY2024
Net Assets
$3.3M
Program Ratio
75.9%
expenses on programs
Employees
12
Volunteers
250
Board Members
10
Voting
10
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.