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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.

DBA: N/A
EIN 13-3223946 · Snapshot of IRS recognition, filing currency, financial health, and governance.
NORD strives to improve the health and well-being of people with rare diseases by driving advances in care, research, and policy.
Principal Officer
Neeta Kotecha
Total Revenue
$34.6M
FY2025
Total Expenses
$40.4M
FY2025
Net Assets
$63.6M
Program Ratio
81.1%
expenses on programs
Employees
116
Volunteers
1,308
Board Members
16
Voting
15
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.