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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 20-2441942 · Snapshot of IRS recognition, filing currency, financial health, and governance.
The mission of the Network is to promote xlh awareness and education for affected families medical professionals and the community at large.
Total Revenue
$381K
FY2025
Total Expenses
$404K
FY2025
Net Assets
$347K
Program Ratio
76.6%
expenses on programs
Employees
1
Volunteers
0
Board Members
10
Voting
10
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.