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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 27-0950477 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To fund Research aimed at finding a cure for Cdkl5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from Cdkl5.
Total Revenue
$716K
FY2024
Total Expenses
$357K
FY2024
Net Assets
$964K
Program Ratio
87.8%
expenses on programs
Employees
0
Volunteers
12
Board Members
8
Voting
8
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.