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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 27-2978110 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To provide funding and support for the research and awareness of rare genetic diseases
Principal Officer
Dennis a BRADY JR
Total Revenue
$123K
FY2024
Total Expenses
$197K
FY2024
Net Assets
$15.0M
Program Ratio
86.3%
expenses on programs
Employees
2
Volunteers
—
Board Members
4
Voting
4
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.