Loading profile…
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 46-3749890 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To improve health outcomes for individuals with x-linked adrenoleukodystrophy (ald) by raising awareness, empowering patients, and accelerating the translation
Principal Officer
Timothy J Maguire
Total Revenue
$982K
FY2025
Total Expenses
$780K
FY2025
Net Assets
$1.5M
Program Ratio
74.8%
expenses on programs
Employees
1
Volunteers
25
Board Members
14
Voting
14
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.