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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 46-5662435 · Snapshot of IRS recognition, filing currency, financial health, and governance.
We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with SNYDER-Robinson Syndrome and related disorders; and for related scientific and charitable purposes.
Total Revenue
$68K
FY2024
Total Expenses
$14K
FY2024
Net Assets
$69K
Program Ratio
76.5%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.