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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 47-2364652 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To create the unique opportunity for specialists within the rare disease community, including clinical physician researchers, scientists and advocates, to work in a single collaborative and more efficient environment. The organization will focus on five medical conditions: adult cystic fibrosis, food allergy and intolerance, bronchiectasis, immune deficiency and aireway inflammatory disorders.
Principal Officer
DR Inderpal Randhawa
Total Revenue
$11.4M
FY2024
Total Expenses
$13.3M
FY2024
Net Assets
$1.5M
Program Ratio
67.8%
expenses on programs
Employees
42
Volunteers
35
Board Members
7
Voting
5
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.