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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 47-5441487 · Snapshot of IRS recognition, filing currency, financial health, and governance.
FY2025 filed as a Form 990-N placeholder. The IRS has not yet released this organization’s full Form 990 for FY2025. All data on this profile reflects the most recent substantive 990 filing; the placeholder year appears in the Financials tab with no breakdown.
Rare disease patient advocacy organization to support individuals and families affected by Kabuki syndrome and promote public awareness of the rare disease.
Total Revenue
$60K
FY2024
Total Expenses
$59K
FY2024
Net Assets
$175K
Program Ratio
66.3%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.