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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 52-1762747 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Find treatments and a cure for fshd while empowering our families
Principal Officer
Mark a Stone
Total Revenue
$4.9M
FY2024
Total Expenses
$5.5M
FY2024
Net Assets
$4.7M
Program Ratio
78.2%
expenses on programs
Employees
23
Volunteers
150
Board Members
17
Voting
17
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.