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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 80-0930101 · Snapshot of IRS recognition, filing currency, financial health, and governance.
We are dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and bettering family support for those affected by the Syndrome.
Principal Officer
Cassie Johnston
Total Revenue
$1.2M
FY2024
Total Expenses
$972K
FY2024
Net Assets
$2.9M
Program Ratio
93.1%
expenses on programs
Employees
72
Volunteers
35
Board Members
11
Voting
9
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.