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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 81-1915808 · Snapshot of IRS recognition, filing currency, financial health, and governance.
1. To offer support to patients and families diagnosed with rare and complex disorders, and also help these patients and families find support from each other. 2. To promote awareness about rare and/or complex disorders as well as the difficulties these patients and families deal with in their daily lives.3. To advocate for patients and families of rare/complex diseases around local, regional and national issues that affect the rare disease communities.4. To offer educational opportunities to patients, families and professionals regarding how to achieve and maintain quality of lives for patients and families dealing with rare/complex diagnoses.5. To search for resources and make those available to benefit rare and/or complex disease patients.
Principal Officer
Julie Gortze
Total Revenue
$138K
FY2024
Total Expenses
$116K
FY2024
Net Assets
$271K
Program Ratio
84.0%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.