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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 81-3646006 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Provide information and resources to patients with hcu; creating connections across patients; influencing policies and reimbursements; and funding research for new therapies.
Principal Officer
Margaret MCGLYNN
Total Revenue
$476K
FY2024
Total Expenses
$362K
FY2024
Net Assets
$1.0M
Program Ratio
82.8%
expenses on programs
Employees
3
Volunteers
14
Board Members
11
Voting
10
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.