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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 82-0769093 · Snapshot of IRS recognition, filing currency, financial health, and governance.
FY2024 filed as a Form 990-N placeholder. The IRS has not yet released this organization’s full Form 990 for FY2024. All data on this profile reflects the most recent substantive 990 filing; the placeholder year appears in the Financials tab with no breakdown.
To provide support to and advocate for those with Xia-GIBBS syndrome and their families and to foster hope for the future. The society also aims to raise awareness about Xia-GIBBS syndrome among the medical and general community and to support, fund, and promote scientific and medical research.
Principal Officer
Monica Pendleton
Total Revenue
$0
FY2024
Total Expenses
—
FY2024
Net Assets
$78K
Program Ratio
—
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.