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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: Stxbp1 Disorders
Legal name: Stxbp1 Foundation
EIN 82-1439459 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To create awareness in the Disorders associated with Stxbp1 mutations. Fund and drive research discovery of a cure. Provide families with tools to help them understand the disease & how to get involved. Advocate to improve early detection. Foster activism to help change policies in favor of orphaned diseases. Improve the lives of our Stxbp1 families.
Principal Officer
Charlene Son RIGBY
Total Revenue
$1.4M
FY2024
Total Expenses
$1.3M
FY2024
Net Assets
$1.2M
Program Ratio
97.5%
expenses on programs
Employees
0
Volunteers
30
Board Members
8
Voting
8
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.