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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 82-2415076 · Snapshot of IRS recognition, filing currency, financial health, and governance.
This organization recently began filing Form 990 and isn't in the IRS monthly Exempt Organizations file yet — it should appear in an upcoming BMF release. Verify Now may return Not Found until then.
Create online self help process for patients to request insurance coverage for rare diseases including appeal and request coverage for out of network services. Educate patients, physicians and regulators on challenges and advocate for broader insurance coverage.
Total Revenue
$66K
FY2020
Total Expenses
$36K
FY2020
Net Assets
$30K
Program Ratio
236.8%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.