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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 82-2661656 · Snapshot of IRS recognition, filing currency, financial health, and governance.
This organization is organized exclusively for educational and charitable purposes, including to educate the public about and to obtain funding for research to cure rare diseases, including specifically juvenile Batten disease.
Principal Officer
Karen Kahn
Total Revenue
$1.1M
FY2024
Total Expenses
$2.7M
FY2024
Net Assets
$383K
Program Ratio
98.0%
expenses on programs
Employees
1
Volunteers
3
Board Members
4
Voting
4
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.