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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 83-2498576 · Snapshot of IRS recognition, filing currency, financial health, and governance.
A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.
Total Revenue
$6.6M
FY2024
Total Expenses
$4.7M
FY2024
Net Assets
$7.1M
Program Ratio
94.6%
expenses on programs
Employees
0
Volunteers
20
Board Members
8
Voting
8
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.