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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 83-4696890 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our mission is to help those affected with all types of Gaucher disease live their fullest life possible. We support patients and their families through peer-to-peer support and education, advocacy, patient and family resources, and networking. We hope to ensure that no families shall face this disease alone.
Principal Officer
Aviva Rosenberg
Total Revenue
$460K
FY2024
Total Expenses
$393K
FY2024
Net Assets
$358K
Program Ratio
86.9%
expenses on programs
Employees
1
Volunteers
—
Board Members
13
Voting
13
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.