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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.

DBA: N/A
EIN 83-4699994 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures
Principal Officer
Kasey Wolleben Officer
Total Revenue
$3.7M
FY2025
Total Expenses
$2.4M
FY2025
Net Assets
$3.3M
Program Ratio
89.3%
expenses on programs
Employees
1
Volunteers
21
Board Members
4
Voting
0
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.