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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.

DBA: N/A
EIN 84-2515094 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Patient advocacy organization for the benefit of the Superficial Siderosis rare disorder community, supporting clinical Research and education.
Principal Officer
Kyle Dempsey
Total Revenue
$86K
FY2025
Total Expenses
$56K
FY2025
Net Assets
$238K
Program Ratio
96.2%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.