The Milla Goni Family Foundation

In 2024, the foundation continued its collaboration with fiqui peru, under the "sumando mananas" (adding tomorrows) project. During this fifth year, the project offered workshops for parents led by specialists covering very important aspects of cystic fibrosis (cf). In addition, the project continued to identify newly diagnosed cf patients and held interviews with their parents to help them understand what cf is and its implications in the life of their child. These patients were offered access to the genetic study needed to identify their specific mutation(s), which is critical information to plan medication and treatment needed by each patient. In addition, the project funded training activities for health professional working with cf patients. Under these activities, 10 health professionals attended international cf conferences and preceptorships; and 3 specialists did internships at cystic fibrosis centers in buenos aires, argentina giving them the opportunity to (continued)