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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 85-0767017 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To raise awareness, educate doctors, patients and caregivers, advance research through expert collaboration and fundraising, and provide support and advocacy for our community in hopes of finding a cure.
Principal Officer
Julia Lefelar
Total Revenue
$223K
FY2024
Total Expenses
$223K
FY2024
Net Assets
$143K
Program Ratio
98.1%
expenses on programs
Employees
0
Volunteers
40
Board Members
5
Voting
5
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.