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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 86-1930096 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our organization is dedicated to increasing awareness providing support to affected families and advancing research efforts related to HUWE1 genetic conditions. Through educational initiatives family assistance programs and funding research projects we strive to improve understanding care and outcomes for individuals impacted by HUWE1 genetic conditions. By raising awareness offering support services and facilitating research collaborations we aim to make a meaningful difference in the lives of those affected by these conditions.
Principal Officer
Sydney Pruitt
Total Revenue
$90K
FY2024
Total Expenses
$125K
FY2024
Net Assets
$67K
Program Ratio
99.6%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.