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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 86-2990471 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.
Principal Officer
Kendra Gottsleben
Total Revenue
$112K
FY2025
Total Expenses
$73K
FY2025
Net Assets
$142K
Program Ratio
99.6%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.