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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 87-2041980 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our mission is to urgently improve the lives of individuals and families affected by Kcnh1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the Kcnh1 patient and professional community raising awareness about Kcnh1-related disorders and advocating for the needs of families affected by rare diseases.
Total Revenue
$190K
FY2024
Total Expenses
$85K
FY2024
Net Assets
$220K
Program Ratio
93.1%
expenses on programs
Employees
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Volunteers
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Board Members
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Voting
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Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.