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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 87-3474254 · Snapshot of IRS recognition, filing currency, financial health, and governance.
The UDNF's mission is to improve access to diagnosis, research, and care for all with Undiagnosed and ultra-rare conditions. We aim to foster collaboration between patients, clinicians, and scientists to enhance the quality of life of Undiagnosed patients. We do this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in Undiagnosed and ultra-rare Diseases.
Principal Officer
Danielle Carnival
Total Revenue
$329K
FY2024
Total Expenses
$1.4M
FY2024
Net Assets
$1.4M
Program Ratio
98.0%
expenses on programs
Employees
0
Volunteers
25
Board Members
15
Voting
14
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.