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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
Other name: Shine Syndrome Foundation
EIN 87-4703593 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our mission is to improve the lives of individuals with DLG4-related Synaptopathy by supporting research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment of DLG4 Synaptopathy.
Total Revenue
$380K
FY2025
Total Expenses
$188K
FY2025
Net Assets
$0
Program Ratio
98.1%
expenses on programs
Employees
0
Volunteers
—
Board Members
10
Voting
10
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.