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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 88-2262496 · Snapshot of IRS recognition, filing currency, financial health, and governance.
To raise funds to help with the costs of individuals with a ultr rare genetic disease called spg50. Spg50 is a degenerative , slowly taking away children's ability to walk and use their hands , and eventually their mental capacity. The funds raised will be used for gene therapy treatment for children with spg50.
Principal Officer
Michael J DWYER
Total Revenue
$808K
FY2024
Total Expenses
$151K
FY2024
Net Assets
$847K
Program Ratio
77.0%
expenses on programs
Employees
0
Volunteers
—
Board Members
4
Voting
4
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.