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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 88-4118178 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our mission is to improve the lives of individuals with DLG4 Synaptopathy by supporting Research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment and cure of DLG4 Synaptopathy.
Principal Officer
Payal Patel
Total Revenue
$57K
FY2024
Total Expenses
$50K
FY2024
Net Assets
$101K
Program Ratio
69.6%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.