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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 91-1397792 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Our long-term vision is a world without Batten Disease. Our mission is to Support Batten families, fund and facilitate Research and advocate for treatments and a cure.
Total Revenue
$602K
FY2024
Total Expenses
$967K
FY2024
Net Assets
$768K
Program Ratio
70.8%
expenses on programs
Employees
5
Volunteers
40
Board Members
13
Voting
13
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.