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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 92-2280592 · Snapshot of IRS recognition, filing currency, financial health, and governance.
The mission is to increase awareness of rare and ultra-Rare Diseases that affect Children With the intention of raising and allocating funds for research and development of treatments and cures.
Total Revenue
$776K
FY2024
Total Expenses
$937K
FY2024
Net Assets
$171K
Program Ratio
96.7%
expenses on programs
Employees
0
Volunteers
15
Board Members
8
Voting
8
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.