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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 93-2052188 · Snapshot of IRS recognition, filing currency, financial health, and governance.
The goals of the organization's research are to identify which genes cause dysfunction, understand the cause of chromosome 3q29 disorders, and discover treatment, prevention, and ways to improve the functionality of these genes. In addition to supporting specific research projects, the organization will work to develop a network of leading scientists and industry partners to increase transparency and facilitate shared resources creating economies of scale on all conditions of chromosome 3q29 disorders. In addition to supporting research activities, the organization also seeks to create a community among chromosome 3q29 disorder patient families. The organization believes that each is a resource for the others and only by sharing information can the greater goal of treatment be achieved. Increasing the number of participants and details on medical history should greatly increase the likelihood of treatment for all those with a chromosome 3q29 disorder. Finally, the organization is commi
Principal Officer
Sandra Forman
Total Revenue
$148K
FY2024
Total Expenses
$43K
FY2024
Net Assets
$115K
Program Ratio
—
expenses on programs
Employees
0
Volunteers
—
Board Members
7
Voting
7
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.