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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 94-3207871 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Medical information, awareness, research, and patient support for an orphan disease.
Principal Officer
Ramesh Swamy
Total Revenue
$451K
FY2025
Total Expenses
$481K
FY2025
Net Assets
$533K
Program Ratio
71.2%
expenses on programs
Employees
7
Volunteers
50
Board Members
6
Voting
6
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.