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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 99-0942343 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Leverage proven advocacy strategies to educate and support patients and those who care for them in disease States that are rare and/or poorly served by current advocacy organizations.
Principal Officer
Lisa Tushla
Total Revenue
$284K
FY2025
Total Expenses
$250K
FY2025
Net Assets
$40K
Program Ratio
100.0%
expenses on programs
Employees
0
Volunteers
—
Board Members
3
Voting
0
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.