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Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
Pulling IRS BMF, Form 990 filings, peer benchmarks, programs, people, and grants.
DBA: N/A
EIN 99-2036138 · Snapshot of IRS recognition, filing currency, financial health, and governance.
Strives to make a meaningful difference in the daily lives of patients and families affected by rare diseases, while also raising awareness and fostering broader support for the rare disease community.
Principal Officer
Anthony Marmo
Total Revenue
$84K
FY2024
Total Expenses
$2K
FY2024
Net Assets
$82K
Program Ratio
58.6%
expenses on programs
Employees
—
Volunteers
—
Board Members
—
Voting
—
Independent
8 answers compiled from IRS Form 990, BMF, Pub 78, and the Auto-Revocation List.